Monday, April 14, 2014

I'm 33 years old!!

It's official! I have lived 33 years! Go me!

While some people dread getting older, I see it as a blessing.  I see it as a chance for me to keep fighting, a chance to learn from my mistakes, a chance to keep growing, and so on.  I see it as God's way of telling me that He is not through with me yet.  There's still work to be done!

Don't get me wrong, I miss my younger years.  A time where I was living "free".  My only major concerns were getting good grades and wanting everyone to like me (I actually still do, but I'm learning slowly but surely that it is pretty much impossible).  Life then, compared to now, was a breeze.

Life now, is tough!  Harder than I'd ever imagined it would be.  My days have been full of laughter and tears, joyfulness and heartache, health and get the picture.  However, all of that has shaped me into the woman I am today.  While I am not where I'd like to be, I will continue to press forth as long as God allows me to live another day.

On another note, most of my day today was GREAT! (So great that I didn't let any of the bad things get to me too much. I'm growing up...whoooohoooo!  LOL!)

I especially like to thank everyone who took the time to call, text, email, write on my FB wall, message me, tweet me, think of me, pray for me, etc.  It meant a lot!  


So, what did I do?

I spent the last two days with my most favorite person in the world!  My daughter Gabrielle!  Mommy's princess!

Yesterday we went to see Disney on Ice!  AMAZING!  Then followed that with dinner at my favorite vegetarian restaurant, Green Vegetarian Cuisine.  Today, a little later than planned due to the rain we had this morning (I dislike driving in the rain), we went to the Tower of the Americas (I've wanted to go since I learned what it was), then followed that with dinner at Carraba's Italian Grill (I love Italian food!).


What a great way to start my Jesus year (see my previous post to see what this means)!

Ok, I'm falling asleep at my computer and this blog post is taking so much longer than planned.

On that note....


Sunday, April 13, 2014

Happy 33rd Birthday to Me!!!

In less than an hour, I will be turning 33 years old.  33!  How blessed am I to have reached this age?  As I look over my life during this past year using a Likert-type scale, the results could be skewed left, skewed right, or perfectly normal at any given moment.  However, despite all of the "ups and downs," God was right there with me whether I was aware of it or acknowledged Him or not. 

A couple of days ago, I had a nice discussion with a devout Catholic woman regarding my upcoming birthday.  She asked, "If you don't mind disclosing it, how old will you be?" Of course I didn't mind!  Living with lupus means each year is a blessing!  I'd readily tell anyone who asks my age!.  So I happily said, "I will be 33!"  “Wow!  That’s a fantastic age to enter into the Holy Week!" was her response.”  So I say, “Uhhhh, why is that?”  Then she says, “That’s how old Jesus was when He was crucified!”  From there, we continued talking about Jesus and His love for sinners like us.  After we parted ways, that conversation stuck in my head and led me to do my own “internet” research on the Biblical significance of the number 33.  (I know that I cannot rely on the internet for accuracy and truth, however, that is just step one to my quest to finding out 33’s significance).  Here is what I have found that stuck out the most for me:

From Wikipedia

·         Jesus' age when He was crucified in 33 A.D., according to many Christian traditions, though not verified historically.

·         Jesus performed 33 recorded miracles

·         According to Al-Ghazali, the dwellers of Heaven will exist eternally in a state of being age 33.  (If this is true, I had better make this the best year of my life!  I definitely need to develop a more intimate relationship with Jesus.  That’s for sure!)

·         The numerical equivalent of AMEN: 1+13+5+14=33


·         The number 33 is connected to a promise or the promises of God.

o   The 33rd time Noah’s name is used in Scripture is when God makes a special covenant or promise with him.  The Eternal promises to not destroy the entire world again with a flood and seals His pledge with the sign of the rainbow (Genesis 9:12 - 16).

o   The 33rd time Abraham’s name is used in the Bible is when Isaac, the child of promise, is born to him when he is ninety-nine years old (Genesis 21:1 - 2).

Apparently, 33 is also considered the “Jesus year.”  According to Urban Dictionary, Jesus year is “The 33rd year of your life.  Time to get moving and get things done (maybe).”

According to The Dictionary of Christianese during your 33rd year, you will undergo a figurative “death, burial, and resurrection.”

People have blogs about their “Jesus year” with full accounts of what took place during that timeframe.  (If I could find the time, maybe I'll do this as well..................maybe not.)

As with any birthday that I could remember, I enter into it looking forward to what that year may bring.  For this one, I look forward to improving my relationship with Jesus.  Lord knows I need to.

Here's to my "Jesus Year!" 

Happy 33rd Birthday to Me!!!!

SN: Google age 33 and you'll get different links professing that 33 is the happiest age of a person's life.  Hmmmm...interesting! 

Thursday, April 10, 2014

ENT appointment results

Today was the day.  I had my long awaited ENT appointment and the result is I NEED SURGERY!  Talk about scared!  I don't like any type of surgery at all.  Thankfully, it is going to be an outpatient surgery, but I don't know all of the details as yet.

Here's what happened.

Went to the appointment, gave the doctor a complete rundown of what's been happening since January.  He checked my ears, throat, and nose and determined that it was all clear.  He decided to go analyze my CT Scan with another doctor, who in turn, decided to consult with a surgeon.  They all came back to explain what was going on and decided to just show me.  They explained what a clean sinus looks like and what a clogged sinus looks like.  The top left sinus, right above my eye was completely clogged and inflamed.  It is very close to my left eye and my brain so they suggested that I get surgery to clear it sooner than later.

The diagnosis, BTW, is Allergic Fungal Sinusitis.  (You can click that link for brief information.  I have found other sites, but it is too much information for me to handle at this time.)

I have a tentative date of surgery, but I am waiting until I get the confirmation call and post-surgery appointment set up.  I need to make arrangements for my daughter and for my drop off and pick up as well.

Oh and my MRI results showed that a portion of my skull is attached to the top of my spine and it appears that I was born with it.  Not exactly sure what that means, but that's what I was told.

Life of a Lupie...

Lord, please be with me...

Thanks in advance.

Sunday, March 30, 2014

Lupie Update

It's been quite some time since I've written in my blog about what's going on in the life of this Lupie.  Remember back in January when I went to the ER because of a major headache and was told I had a sinus infection?  Well, after I finished the course of medicine prescribed for that, nothing changed.  I still have that dreadful headache.  I ended up seeing my rheumatologist on February 20th and my primary care doctor (PCM) on February 24th.  Both ordered a series of blood work to see what was going on and the only thing that came back with an issue was low Vitamin D, which is actually something that I go through regularly.

Here's what happened at the Rheumy appointment:  All meds are staying the same, except we are going to try to lower prednisone to 2.5 mg a day instead of 5 mg which I am currently on.  My doc will be deployed for 6 months so my next couple of appointments will be with a different doctor.  I requested the head of Rheumatology since I've dealt with him on numerous occasions, but we'll see how that goes.  That about sums it up.

Anyway, since that both doctors visits didn't prove useful, as far as this dreadful sinus infection is concerned, and the meds didn't help, I ended up back in the ER on March 3rd because I couldn't take it anymore.  I was having a hard time focusing on schoolwork.  I was having a hard time completing my assignments.  I was doing the best I can under the circumstances but, seriously, enough is enough.  I go back to the ER and was given a referral to see an ENT specialist along with some Sudafed, Claritin, and more Motrin.  Well, guess what, I finished all of that and my ENT appointment isn't until April 10th.  March 19th, I ended up seeing my PCM again and she put me on 2 weeks of Levaquin this time instead of the 5 days like the ER gave me back in January.  Of course I had to stop taking my Imuran because I can't take that medication while on antibiotics. As of today, I have 2 days left of those meds and then I can go back to taking my Imuran.  So far I've had some stiff joints here and there but nothing too serious.  Thank God!  She also ordered a follow-up CT Scan which I'll be taking on April 2nd. 

Also, remember I said I needed to get an MRI?  Well, I got that done this past Friday.  Of both my head and my upper spine.  I don't have the results yet though.

My head is still hurting and I'm still taking Motrin daily to try to deal with it.  I'm still having a hard time trying to focus and do work through the pain.  Did I mention all I want to do is sleep!  I sleep way more than I am awake!!!  I have 2 research papers to finish, a presentation to put together, a reading journal to write (which I haven't finished reading for), and my regular weekly reading and writing assignments to do.  I only have 1 more month left of the semester and it feels like I don't have nearly enough time to get it all done.  I need Jesus!

Oh, on another note, I'm starting my second round of Focus T25 tomorrow (I hope my head doesn't interfere with my plans!)  I had great success with the first round but I still have more to lose and more to tone.  Plus, I want to master the program.  I want to be able to do it without having to modify the bulk of the moves.  I know I have limitations due to Lupus, but some of the limitations I've been doing has nothing to do with joint issues, but more of out of shape and lack of strength issues.  Haha!  I want to NAIL IT!

Double oh!  My school computer has been fixed.  I'm almost 100% back up and running.  I just need to put all of my programs back on there.  :-)

That's it for now!

Until next time...Goodnight!

Sunday, February 23, 2014

Love & Happiness

No, this post isn't about my love and happiness.

Or, maybe it is.  :-)

I went to the X Annual Love & Happiness Show here in San Antonio.  I LOVED it and I was full of HAPPINESS because I went!  A M A Z I N G!!! (Thanks for the EARLY birthday present ma!) 
I was blessed enough to get floor seats.  I was soooooo close to the stage it felt like an intimate concert (until you turned around of course!  LOL!).

So, who did I see?  If you looked at the flyer above,  you'll see that Mo'Nique, Monica, George Willborn (whom I've NEVER heard of) and the wonderful Ms. Patti Patti was there!!!!  The music was GREAT!!!  The DJ was GREAT!  Everything was just awesome!

I snapped a few pics to share...not too many because I was too busy singing and dancing along with Monica and Patti LaBelle!  :-D
Mo'Nique in one of her many outfits for the night. She's doing so well with her weight-loss journey.  
Monica looked awesome! I loved her tribute to the late Whitney Houston.  She can blow!  :-)
The Legendary Diva Ms. Patti Patti making her grand entrance.
Isn't she beautiful?!?  69 years old and gorgeous!!!
Ms. Pattie said goodnight and most of the audience thought she was leaving.  Nope...not me!  She came back on stage, wearing this, to sing two more songs.
Ok. Now she's leaving for real!  Goodnight Ms. Patti!
I had a fantastic time!  I was so thankful that I went!  Oh and did I mention that I got a nice hug from Mo'Nique?  Yup!  I sure did!  That's what happens when you have floor seats and she decides to go walking around to greet the people in the audience.  :-)

Until next time...